We presented at the US-UK Scientific Forum on Researcher Access to Data two day event in Washington DC.
Full archive of videos: https://www.nasonline.org/programs/scientific-forum/researcher-access.html
Icebreaker One’s presentation begins at 46m 44s.
Session 4: Privately Held Data: Opportunities, Challenges, and Lessons for Researchers
This session will explore data collected by private companies, which often contain useful insights that can help alleviate major societal challenges including climate change, healthcare, food security, and disinformation. Accessing this data, however, can be costly, controversial, and unreliable. Solving these challenges could help unlock vast amounts of data for researchers, providing novel insights and better guidance for policymakers. With lessons from social media platforms, mobile health applications, and retailers, this session will highlight best practices for accessing data held by private companies and consider solutions to the challenges of commercial sensitivity, data protection, and emergency preparedness. Attendees can expect to leave with an understanding of the value to be gained from privately held data, topical data security challenges, and an overview of partnership-enhancing technologies.
- Gina Neff, Professor and Executive Director, Minderoo Centre for Technology & Democracy, University of Cambridge
- Henry T. (Hank) Greely, Professor, Stanford School of Medicine, Director, Center for Law and the Biosciences, Stanford University
- Cyndi Grossman, Senior Director, Biogen Digital Health
- Uyi Stewart, Chief Data and Technology Officer, Data.org
- Gavin Starks, Founder and CEO, Icebreaker One